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Social Sciences and Humanities

D-Index
66
Citations
18589
World Ranking
970
National Ranking
456

Overview

Benjamin S. Wilfond is affiliated with the University of Washington in the United States. Their research spans multiple disciplines, primarily within medicine and biochemistry, genetics, and molecular biology. Wilfond's work includes a significant contribution in various specialized subfields such as genetics, public health, pediatrics, general health professions, and physiology.

The scientist's research topics cover a diverse range of areas, including:

  • Ethics in Clinical Research
  • BRCA gene mutations in cancer
  • Genomics and Rare Diseases
  • Ethics and Legal Issues in Pediatric Healthcare
  • Ethics in medical practice
  • Childhood Cancer Survivors' Quality of Life
  • Patient-Provider Communication in Healthcare

Benjamin S. Wilfond has contributed to several recent papers, reflecting their interdisciplinary focus and collaboration with other researchers. Notable recent publications include:

  • An open science study of ageing in companion dogs, 2022, Nature
  • Parental Factors Associated With the Decision to Participate in a Neonatal Clinical Trial, 2021, JAMA Network Open
  • Advancing Genetic Testing in Kidney Diseases: Report From a National Kidney Foundation Working Group, 2024, American Journal of Kidney Diseases
  • Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium, 2021, Journal of Clinical and Translational Science
  • Advancing genomics to improve health equity, 2024, Nature Genetics

The scientist regularly collaborates with a core group of coauthors, including:

  • Katrina A.B. Goddard
  • Stephanie A. Kraft
  • Devan M. Duenas
  • Tia L. Kauffman
  • Kathryn M. Porter

Wilfond's research is frequently published in venues such as The American Journal of Bioethics, UNC Libraries, Genetics in Medicine, The Journal of Pediatrics, and PEDIATRICS. These publication venues align with their main areas of study and reflect a professional focus on bioethics, genetics, and pediatric health.

Best Publications

  • Managing incidental findings in human subjects research: Analysis and recommendations

    Susan M Wolf;Frances P Lawrenz;Charles A. Nelson;Jeffrey P. Kahn

  • An Official American Thoracic Society Clinical Policy Statement: Palliative Care for Patients with Respiratory Diseases and Critical Illnesses

    Paul N. Lanken;Peter B. Terry;Horace M. DeLisser;Bonnie F. Fahy

  • Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

    Jeffrey R. Botkin;John W. Belmont;Jonathan Sanford Berg;Benjamin E. Berkman

  • Palliative care for children

    R. M. Nelson;J. R. Botkin;E. D. Kodish;M. Levetown

  • Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

    Susan M Wolf;Brittney N. Crock;Brian G Van Ness;Frances P Lawrenz

  • Clinical Trials and Medical Care: Defining the Therapeutic Misconception

    Gail E Henderson;Larry R Churchill;Arlene M Davis;Michele M Easter

  • Ethical issues with genetic testing in pediatrics

    R. M. Nelson;J. R. Botkin;E. D. Kodish;M. Levetown

  • How Do Institutional Review Boards Apply the Federal Risk and Benefit Standards for Pediatric Research

    Seema Shah;Amy Whittle;Benjamin Wilfond;Gary Gensler

  • Actionable exomic incidental findings in 6503 participants: challenges of variant classification

    Laura M. Amendola;Michael O. Dorschner;Peggy D. Robertson;Joseph S. Salama

  • Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs.

    Scott D. Grosse;Coleen A. Boyle;Jeffrey R. Botkin;Anne Marie Comeau

  • Hereditary Hemochromatosis: Gene Discovery and Its Implications for Population-Based Screening

    Wylie Burke;Elizabeth Thomson;Muin J. Khoury;Sharon M. McDonnell

  • Recommendations for returning genomic incidental findings? We need to talk!

    Wylie Burke;Armand H. Matheny Antommaria;Robin Bennett;Jeffrey Botkin

  • Broad Consent for Research With Biological Samples: Workshop Conclusions

    Christine Grady;Lisa Eckstein;Ben Berkman;Dan Brock

  • Phenylketonuria Scientific Review Conference: state of the science and future research needs.

    Kathryn M. Camp;Melissa A. Parisi;Phyllis B. Acosta;Gerard T. Berry

  • Genetic Testing for Susceptibility to Adult-Onset Cancer: The Process and Content of Informed Consent

    Gail Geller;Jeffrey R. Botkin;Michael J. Green;Nancy Press

  • The Experience of Families With Children With Trisomy 13 and 18 in Social Networks

    Annie Janvier;Barbara Farlow;Benjamin S. Wilfond

  • Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.

    Stephanie A. Kraft;Mildred K. Cho;Katherine Gillespie;Meghan Halley

  • The cystic fibrosis gene: medical and social implications for heterozygote detection.

    Benjamin S. Wilfond;Norman Fost

  • Limitations of direct-to-consumer advertising for clinical genetic testing.

    Sarah E. Gollust;Sara Chandros Hull;Benjamin S. Wilfond

  • Guidelines for Implementation of Cystic Fibrosis Newborn Screening Programs: Cystic Fibrosis Foundation Workshop Report

    Anne Marie Comeau;Frank J. Accurso;Terry B. White;Preston W. Campbell

  • Standards for the diagnosis and management of individuals with alpha-1 antitrypsin deficiency: Executive summary

    James K. Stoller;Gordon L. Snider;Mark Brantly;Robert J. Fallat

  • Erratum: Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents (The American Journal of Human Genetics (2015) 97 (6-21))

    Jeffrey R. Botkin;John W. Belmont;Jonathan S. Berg;Benjamin E. Berkman

Frequent Co-Authors

Mildred K. Cho
Mildred K. Cho Stanford University
Gail P. Jarvik
Gail P. Jarvik University of Washington
Ellen Wright Clayton
Ellen Wright Clayton Vanderbilt University Medical Center
Barbara B. Biesecker
Barbara B. Biesecker RTI International
Holly A. Taylor
Holly A. Taylor Tufts University
Susan M. Wolf
Susan M. Wolf University of Minnesota
Jonathan S. Berg
Jonathan S. Berg University of North Carolina at Chapel Hill
Leslie G. Biesecker
Leslie G. Biesecker National Institutes of Health
David Wendler
David Wendler National Institutes of Health
Wendy K. Chung
Wendy K. Chung Columbia University

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